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I am a seemingly healthy 28 year old man. On August 15th of last year I started experiencing dizziness. This, and I can't be more emphatic about this, has been constant ever since. It is not room spinning, the best way I can describe it is it feels like I'm wearing a glasses prescription that is slightly off. When this first started occurring I was unable to leave my house. Upon going to a general practice doctor he said, "it's probably an ear infection" and gave me antibiotics. These did not work. Weeks went by without my condition improving. Also during this time I would have occasional numbness spreading from my neck through my head and to my forehead. One day I felt so bad I went to the emergency room and they did a bloodwork and a ct of my head which both came back fine. I then went to an ear specialist who dismissed the numbness and said he believed I had a condition called BPPV. I was given exercises to fix the problem. They did nothing. After looking into it I saw that BPPV is a condition that occurs for a few seconds at different times. I again explained to the DR. that it was not temporary, it is constant from waking to sleeping. Around this time I was rubbing my upper neck as it was quite tense, and the right side of my neck where the spine meets the head swelled about two inches. I have for years suffered from bruxism which has led to a lot of tension in my neck and back. I explained this to the ear doctor, who dismissed it and ordered more audio tests which also came back fine. He then ordered an MRI on my brain. Again, everything was fine. I then went to a neurologist. By this point the numbness was almost constant and the dizziness would get better or worse based on how bad my neck was. The Neurologist said I was just stressed by the dizziness and said she believed I had Labyrinthitis. She sent me to a physical therapist who was an expert at treating labyrinthitis. She also sent me to another pt for neck spasms. After a lot of treatment for Labyrinthitis the PT decided she didn't believe I had it. The PT for my neck was helpful and the numbness decreased for a few days after each appointment. However, it never went away and the pt(which my insurance does not cover) had led me to over $1000 in bills for PT alone. So, I had to stop. She recommended I start going to a gym and try strengthening my neck and back. I have. I also went back to my Neurologist and finally convinced her to take an MRI of my neck and back. The MRI showed that a have a few bulging discs but not bulging enough that it is out of the ordinary. It also showed on my MRI that my back and neck were in extreme spasm. Her recommendation was a pain specialist. He recommended a steroid injection into the spine in the area of the bulging discs. This was done. It had no affect. In the mean time I have had my eyes checked, seen accupuncturists, chiropractors, and counselors who have put me on anti-anxiety medication to try to calm my back issues. None of these have really helped. Now, when I wake up the numbness will start within an hour of waking and still leaves me slightly dizzy and it almost feels like a numb pressure on my eyelids. I have a feeling that this has nothing to do with the bulging disc. The worse the bruxism is the worse I feel. This affects everything I do. I am simply miserable and can't really take much more emotionally. If you have any advice or comments it would be greatly appreciated. Thanks
erin matthew haines
First of all, I'm sorry to hear about your situation and I understand the frustration of having these symptoms.
Dizziness as a complaint (non-vertiginous as you describe) and as you're likely becoming familiar with, covers quite a bit of the neuro-otologic pathways and can therefore be difficult at times to reach a diagnosis. I'm assuming your neurologic and otologic exams were normal? (do you distinctly remember being told you had NO pathologic nystagmus and normal vestibular ocular reflexes or VOR's?) Also were you checked with Frenzel lenses? (do you remember wearing funny looking goggles either by the neurologist or ENT doc? What was the extent of the ENT evaluation? Labyrinthitis is usually viral (at least we think it is, however no virus has been isolated as far as I know)
Do you have headaches?
Have you required a bite fitting for the bruxism?
Tell me more about the bruxism. Do u have sleep problems, sleep apnea etc
Has your thyroid been checked?
Any other health problems in the remote or current past that you havent mentioned? Recent vaccinations?
Is your gait affected? Balance ok?
I have taken ocular test and worn the biggoggles, they turned out fine. My Neurological exams were fine too. The ENT
exams, included looking in my ears, eyes, throat, and audio testing. I do
not experience Headaches. I do wear a mouth guard at night. My sleep is
mediocre at best. Usually about 5 to 6 hours. My thyroid to my knowledge
hasn't been checked. No other recent health concerns. My balance is fine.
It was worse but has gradually gotten better. However, when the dizziness
gets bad I do have to sit down.
I have a few thoughts for you. If this were a vestibular neuritis, and you are trending in a better direction in regards to your symptoms, then it is not surprising it is lasting for many months. However, putting together your neck problems, bruxism, dizziness, possible musculoskeletal problems, your symptoms may be more multifactorial. There is a rare version of headaches called vestibular migraines, and may not necessarily have much of an actual headache component to them. I cannot say whether this is what you suffer from, as our exchange of information on this forum obviously cannot include a comprehensive evaluation into your problem. I can tell you what I've seen and done in my experience thus far. I've had success with trigger point injections, especially with people that suffer from neck problems with headaches and dizziness. Not all physicians do these procedures, and depending on the physicians training (mine was more procedurally based in terms of pain management) you may or may not find a neurologist that does them. My guess is you will. Other options/approaches to treatment, would be treating with headache prophylactic medications regardless of whether youre having headaches or not, and which can help with neck problems as well. Also, some people fall into a wastebasket category of just being plain dizzy with no apparent cause. For these people, medications that help suppress the vestibular system/ or muscle relaxants can help. Your physician can discuss these options and others if your symptoms dont continue to improve. A touch of time and good sleeping, eating and overall health habits can sometimes make enough difference to make this tolerable and better. I hope things get better for you.
Hi, I have the same symptoms as Alias19 and going on for 2 years now. I have also tried many many things with no success! It's destroying my life!
I would be really interested to know if a solution was found. I have seen several posts on websites about similar problems, but nobody ever comes back to post how they solved it. I'm really hoping they have solved it and that's why they're not posting it, not because it can't be solved!! Fingers Crossed.
I look forward to hearing from anyone who can provide information on this.
I've had similar problems starting around July 08'. This is devastating my life. I have even went as far as detoxing, I haven't had the back exams, but the docs aren't as interested in checking all the possibilities for me. I've made many life-style changes and still to no avail. Pretty much they just throw their hands up and offer me meds to help with the emotional stress. I've had many vision problems since it began, to the point of not being able to alter focus quickly, there would be a lag like in a camera with auto adjust. I'm at my wits end here. I exercise and have been exercising regularly even when this began. I was flying allot, about 17 flights in one year, and was drinking allot of diet drinks. Also I had a root canal shortly before the onset of the vertigo and was being vaccinated for small-pox. Around week six of the small pox inoculation. If any of these sound familiar to you, please contact me and maybe we can put our heads together, or as everyone here is hoping, if you have any good word, please post back. In the event of relief, I'm sure anyone who is having symptoms as emotionally troubling will be glad to pay you for posting. Thank You all for posting and letting me know I'm not alone. There has to be something!
I am having the same problems. It feels like I'm on a turbulant plane. At times I feel like I'm changing in elevation and walking down hill. I have a degenerating disc in my neck and severe arthritis throughout. I have seen countless doctors. Had a pituitary tumor removed on 2/17/10, but the neurosurgeron said that it wasn't the cause of my dibiliating symptoms.
I am all alone and can't take care of myself or drive. I am going to lose my job if this continues. I am terrified that I'll never be able to do anything normal again. I've been to PT and found that when my neck was rubbed behind my left ear, near the degenerating disc, that the non-spinning vertigo worsens. There are many times that I can't eat, get naseous and vomit. I feel tremendous pressure in my head and extreme pain in my neck. The neurologist said it could be a type of migraine, but I've had those before with no vertigo and know exactly what that pain feels like. The pain in my head is radiating from my neck. Xanax in the evening doesn't make the dizziness go away, but it does make me more relaxed. It's affecting my vision and I get worse as the day goes on.
I feel like I'm walking like a drunk person, but fully aware of it. This has been going on since 10/09. No doctor has been diligent or concerned enough to research this problem. And, I don't want to be diagnosed with something just because they can't figure out what it wrong with me, which is what the neurologist said he would do. He'd diagnosis and treat me for migraines since he doesn't know or doesn't try to find out what my problem really is.
The dizziness never goes away and the MRI does show that I have a pinched nerve in my neck that is causing some numbness in that arm and upper thigh. I am better in the morning, but it never goes away, ever. I can't live like this anymore. I need to find a doctor who will be dedicated to finding an accurate diagnosis and treatment. I am losing faith in the medical community. If they don't know what it is, they don't even try to help, they just blow me off and send me elsewhere. Do I need to go into debt and go to the Mayo Clinic? I need someone's help. I just had MRI's done this past week of my head/brain and neck. But, this neurologist is gone for a month. I can't wait another month. My boss want's me to find out now. It is unacceptable for me to have to keep waiting. I have the dics of my MRIs taken this past week. Can you recommend where I can go for somjeone to get ot the bottom of this so I don't have to keep waiting for treantment? Please help!
I am having an extreme form of non-spinning vertigo which has not stopped at all since it started five months ago It feels like I'm on a turbulent plane. At times I feel like I'm changing in elevation and walking down hill. I have a degenerating disc in my neck and severe arthritis throughout. I have seen countless doctors. Had a pituitary tumor removed on 2/17/10, but the neurosurgeon said that it wasn't the cause of my debilitating symptoms.
I am all alone and can't take care of myself or drive. I am going to lose my job if this continues. I am terrified that I'll never be able to do anything normal again. I've been to PT and found that when my neck was rubbed behind my left ear, near the degenerating disc, that the non-spinning vertigo worsens. There are many times that I can't eat, get nauseous and vomit. I feel tremendous pressure in my head and extreme pain in my neck. The neurologist said it could be a type of migraine, but I've had those before with no vertigo and know exactly what that pain feels like. The pain in my head is radiating from my neck. Xanax in the evening doesn't make the dizziness go away, but it does make me more relaxed. It's affecting my vision and I get worse as the day goes on.
I feel like I'm walking like a drunken person, but fully aware of it. This has been going on since 10/09. No doctor has been diligent or concerned enough to research this problem. And, I don't want to be diagnosed with something just because they can't figure out what it wrong with me, which is what the neurologist said he would do. He said he'll diagnosis and treat me for migraines since he doesn't know or doesn't try to find out what my problem really is.
The dizziness never goes away and the MRI does show that I have a pinched nerve in my neck that is causing some numbness in that arm and upper thigh. I am better in the morning, but it never goes away, ever. I can't live like this anymore. I need to find a doctor who will be dedicated to finding an accurate diagnosis and treatment. I am losing faith in the medical community. If they don't know what it is, they don't even try to help; they just blow me off and send me elsewhere. Do I need to go into debt and go to the Mayo Clinic? I need someone's help. I just had MRI's done this past week of my head/brain and neck. But, this neurologist is gone for a month. I can't wait another month. My boss wants me to find out now. It is unacceptable for me to have to keep waiting. I have the discs of my MRIs taken this past week. Can you recommend where I can go for someone to get to the bottom of this so I don't have to keep waiting for treatment? Please help!
I have read your posts and we have a son who is 15 and is experiencing vertigo 24/7 since January 2010. He had an acute attack the day after Thanksgiving that left him bed ridden for almost a week and gradualy got better. Then in January, he got it back, this time instead of a spinning sensation it is more like a rocking sensation. We have been to ten different doctors of different specialities and have learned a lot about the human body! His other symptoms are fatigue, lack of concentration, forgetfulness, heavy or pulling on his heart, unexplained marks on his skin like piticia (spel?) and small pustules, periods of sleeplessness, musles aches, anxiety, depression, etc... He had hearing tests and a test in what they call the "dizzy chair" (vestibular test) where they put an apparatus on his eyes to monitor their movement and then they move the chair around for about an hour, in his words he said it was hell. This doctor put him on a low salt diet, saying it could be meniers disease, we haven't seen him again. He has had so many tests and most of the time he is very brave. He was diagnosed with hypothyroidism by an immunologist who did the correct test and we saw an endocrinologist who did another two tests, one which was just within limits and another one that had high TSH. Sometimes the actual thyroid hormone (free T4) can show up normal, but the TSH (thyroid stimulating hormone) can be high meaning that it is having to overstimulate the thyroid to procuce its hormone. We were hopeful that the low thyroid was the reason for the symptoms (hypothyroidism can cause dizziness or vertigo) but he has been on the hormone therapy for a little more than a week and it has not helped, but we are still pursueing the therapy to level out his thyroid hormone levels. We were told it could be migrain related vertigo and have tried medication from a neurologist that could give him the very things we are trying to get rid of! We have looked into vasculitis as a cause because he had a form of it called HSP two years ago, but the immunologists has ruled it out. His pediatrician has given him a round of prednisone to see if it was caused from any inflamation, that has not worked. He has had 2 MRI's and a CT scan with contrasting die. The second MRI showed some "out pouching" but when the CT scan was done they said it was an infundibulum (spel?) which we were told by the radiologist as normal and we also had a neurologists look at it and tell us it is were his pituitary gland was. His blood work does not show that he is fighting any infection but we have read that Lyme's disease can cause many of his symptoms so we had a blood test for that done today. He had a heavy barbell hit him in the head and give him a black eye in september before all this. Our pediatrician said that can cause a perylimphatic fistula which is a leak between your air filled middle ear and your fluid filled inner ear. He is seeing an ENT about that in two days. As of now we are still pursueing the perylimphatic fistula, the migrain related virtigo (with another neurologists who will try an "abortive migrain medication"), and the lyme disease or other infecteous disease. After seeing what my son is going through I have great compassion for all of you and I pray that you will be able to resolve your problems soon. I promise to keep up to date on this and when we find a cure, I will write about it. Thanks for listening, Eric
I wrote earlier about our son who has had vertigo since Jan 10. We went to the House Ear Institute in Los Angeles. I was not impressed because the doctor basically said that in most vertigo cases they never find a diagnosis but it will eventually will go away. He suggested that my son continue doing as much activity he can (he had stopped all sports and other activity because he said it made the problem worse) and that will help his vestibular system "rehabilitate" itself. He suggested vestibular physical therapy and continue trying to find the problem. He did suggest we do allergy testing (inhalents and food) because some food and environmental allergies can cause dizzyness problems, but other than that he did not offer any more testing. We have an appt soon for the allergy tesing. We got preliminary results back from the Lyme disease test and they were negative. We saw a pediatric cardiologist today and his heart is working well. Have any of you looked into migraine related vertigo, sometimes called a vestibular migraine? Many articles on-line say it can be dizzyness or vertigo that can be with or without a headache and can last sometimes for long periods of time and the medication can take weeks to a month to work. Our next stop for our boy is his neurologist to see if she can prescribe a medication that will not be so bad with side effects. Keep working at the problem, I pray all of you will get help soon. Find someone to be your advicate as you try to get appointments. I know that some will put you off weeks and months. It may be helpful if you or someone else can explain to the receptionist how much you are suffering. Sometimes it works get the "soonest appointment" and ask if you can be put on a list to be seen sooner if there is any cancellations. Then keep calling and ask if there are any cancellations, this has worked for us a couple of times! Take care
i just wanted to say a few things ive been sick for over 20 years for about 8 of those i was house and bed ridden the dizziness and vertigo was so bad was hard to cope had brain fog headaches they told me i had meineres disease what a joke last year i got dianoised with chiari 1 malformation some of u should check that out also check out syrix i had mri's of my neck they over looked the chiari then last year had my mri done elsewhere they found it i later got the disc from previous mri and saw it myself but they missed it any time u have test done alwaYS ask for a copy to be sent to u keep yr own records i hope yall get better i so understand the dizzies they destroy yr life
My wife is a 30 yr old healthy female. She has recently been to the emergency room three times with many of the symptoms you all have described, and has an appointment with our family practitioner in a couple of days. I was just wondering if any of you had received any new information as far as your own diagnoses, which we could ask the doctor to look into. Any information would be great.
I've had this since April 2010. Woke up with horrific dizziness. dragging my right foot - couldn't feel the floor. couldn't see myself in the mirror out of right eye. Did not have a stroke. Horrific pain in back of the neck by the end of the day.
Have had MRI's of the brain, ct's of the neck/spine, been to chiro, orthopoedist,ENT , accupuncturist, pain specialist, neurologist, opthamologist, massage, ear tests, blood tests.
vertigo meds, muscle relaxers, stretching, site injections, bought special pillows, neck stretchers, neck braces, hot/cold packs.
Docs are all clueless. found nothing.
Now it's 8 months later and my life has stopped. I can work, but must nap constantly. I'm ok for about an hour each morning. then the eyestrain starts, the dizziness rolls in, like i'm standing on a boat in a harbor and everything is going slightly up and down, back and forth all at the same time. Sometimes the neck pain is so bad i cry. Up to 1000 mg acetominophen each day. the pain in my eye feels like someone is pushing on the outside of the top of the lid with their finger.
The pain in the back of my neck feels like my brain is melting down my spine.
Zero concentration. Zero memory. Zero interest in life.
Hospitilized once, sent me home with oxycodone, which made my eyes roll - just what i needed... more dizziness.
Only thing found was slight bulging of my spine in a few discs.
I"m just 50.
Not overweight. don't smoke, don't drink, exercize until this happened. Now I live to sleep... and spend my time at doctors offices.
I just want it all to STOP.
Been dealing with this issue for 5 years, no avail...going to doc next week to see what else they will pull out of their sleeve that I need to pay for! My life has come to a HALT. I have all the symptoms that all have posted to also. People think I am nuts I think, All the tests,dyes, pills...I am still not functioning as i once did. What happend, no answer for this mystery diagnosis. I do feel better to know I am not alone and glad to search different paths due to reading all these posts.
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