Getting worse after 30 years of weirdness; any thoughts?

[indy77]

Hi, and thanks.

I'm trying something different.

I have some weird bunch of things going on with me, neuromuscular, metabolic, or endocrine. My HMO of 30 years says it's porphyria - could be, but not on the basis of solid labs, more of exclusion. They offer valium. I'd rather have a better dx.

I've just, as of 2 days ago, put some of my information on a $7 website under the domain name diagnose-me.org. I'd be delighted to offer rewards for anyone who can help point me in a better direction, because life is kinda grim otherwise.

I'm a conservationist, a darn good one, but am not physically able to do it much anymore. I'd like another decade if possible.

many thanks for taking a look, if anyone does.

best

DJ