Temperature changes in limbs

[FeatherMe]

My forearms and hands and my calves and feet are cold and when I touch the rest of my body it seems like it is on fire. I just took my body temp and it was 96.6! My cold parts don't feel cold until I touch a hot part of my body. In fact, my palms are feeling on fire right now but the hot part of my body is still hotter yet. I don't sweat. I'm not sure that has anything to do with it. Autonomic neuropathy? BP = 92/55 Pulse 58 Many of these symptoms are recent, like within the past month or so. Could the addiction to opiates have masked these things?


We rejoice in our sufferings. Suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us. God has poured out his love into our hearts by the Holy Spirit. Adapted Romans 5:3-4FeatherMe

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[clinicalguru3]

Where did you take the temperature from.
The burning pains you describe could very well signify a "small fiber neuropathy".

The "small nerve fibers" are responsible for pain perception as well as autonomic functions and so very often these functions are affected at the same time.

Hope that helps and keep us updated regarding your appt at Mass Gen.

all the best

[FeatherMe]

My visit to Mass General went so very well, better than I expected and I had good feelings about it. In all three hours were spent there with the doctor and then waiting on her boss and then being with two other doctors and more time with the first. Kindness, consideration, being totally human, unhurried, good questionners, good listeners were all evident and demonstrated.

I will be returning for testing for two days and then three weeks later for an appt. to hear results and future plans. They told me they don't have all the answers as their expertise is limited to one area and they feel more than one area is involved so after the testing they will be sending me where they feel I can get further help. Hopeful, yes, I say so.

Thanks again for your direction and help.

Feather Me

[FeatherMe]

As time has progressed, the temperature changes are less noticeable by me, but are still there to others if I touch them or they touch me. What has caused the desentization - fewer nerve fibers?

[NeuroLogic]

Hi FeatherMe,

I have a similar situation as you. My core temperature is usually low; the average is 96.8F. I checked many times for two weeks as requested by my sleep doctor and that was the average. I've read that even a small difference below 98.6F can cause problems and two degrees can be very significant. Low core temps are a common indication of hypothyroidism, which I read on the Mayo Clinic website can cause peripheral neuropathy.

I think I have sensory and autonomic progressive peripheral neuropathy. It is often activated by pressure. If I stand up, my feet feel hot. When I lie down they feel cold. Extreme sensitivity has been spreading especially the last six months. The latest problem area is my ankles.

I also have legs and thumbs that flare up and feel too hot. My scalp sometimes feels as if it's burning. Despite the heat I never sweat, so I can't cool down easily. Every night I wake up 2-3 times feeling too hot. I have to get up, replace my cooling pads and pillows, remake my bed, and try to get back to sleep. The room temperature has to be 19C or below otherwise I feel too hot and can't sleep.

I've read that failure to sweat is a fairly common issue with peripheral neuropathy. I'm still trying to figure everything out. It's been a slow process.