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Widespread Fasculations (Scared to death)

Muscle twitches and fasciculations may raise the fear of a neuromuscular problem such as ALS

Widespread Fasculations (Scared to death)

New postby monr905 on Wed May 20, 2009 6:40 pm

I am a 37 year old guy that has had the worst two years of my life. :cry: About (a month?) ago, I started to notice muscle twitching in my right bicep. I thought it was "cool" and didn't think anything of it. Well, I started to notice that my right eyelid was (getting stuck? twitching?). I did the unthinkable!

I started to do research on the internet. I am used to looking up different medical problems because as I said two years ago, my mother was diagnosed with adenocarcinoma of the right upper lobe of her lung (Lung cancer). She had a lobectemy and she has been in remission ever since. My dad died in Dec 07', I found him in his room a victim of a massive heart attack. Then my mother's shaking started. I don't want to bore you with paragraphs of my differential diagnoses (hahah I am a police officer and not a doctore, i swear!) She was finally diagnosed with Parkinson's Disease along with PolyMyagia Rhumatica. (PMR?) (taking a breath) (ok...) She is doing better. My x-wife and I decided back in June of 08' that were were going to try and get back together and it has been a tumultriuos ride. My point is that I have been under an EXTREME amount of stress. As a cop, I see live, eat and breath stress for lunch. :twisted: But, over the last two years I have been on overload. Anyway, I looked on the internet for the cause of twitching and found A....L....(you know). I know I am trying to be humorous, but I am scared out of my freakin mind. Aisde from the stress, the only thing that I can think of that would cause anoything like this was the fact that I aggravated my mid to low back again by over exerting and picking up a very heavy bag a month ago that I had no business picking up (back injury? Cause?)....

As of today, fasculations are mostly in my right calf, and thigh, sometimes left, right arm, abdomen, right shoulder and right eyelid and ONCE between my left thumb and index finger(that freaked me out! :!: ). My recent nightly ritual of a glass (or two 8) ) of wine and my 5mg of diazepam seem to slow them down, but they seem to be getting worse and so does my anxiety. I don't have any weakness that I know of or any other signs but am deathly afraid that I am not going to see my kids grow up. My fasculations happen many times a day for about 5 to 15 seconds at a time.

I went to the doctor this Monday and he told me that most people with "Adam Lincoln Samuel" (cop lingo, guys) come in looking like a "ragdoll" and eyelid twitches made him believe that I am not managing my anxiety. (right? :roll: ) He told me to schedule an appointment with him in 8 yes... E I G H T weeks and we would evaulate from there. I went home twitched a bit and called him back to have him give me a referral to a neuro appt for this Friday. I am going to try so hard to talk him into an EMG!!! I need this to be over!

I have never been more nervous in my life!!!! I have always been OCD and a hypochondriac, but the twitching is no omnious! I am doing pushups, running, opening peanut butter jars after tightining as hard as I can, trying to caryy extra loads of plastic grocery bags with one hand, just to keep proving to my self that I am not losing muscle strength.

I don't know why I am rambling, I guess I am just hoping that someone that reads this post will help reassure me this sounds like BFS. I have never been the type of guy to really take day by day and enjoy it. I tell ya! The last two years changed me and this experience, if I live through it has really metamophisied me.The one thing that I noticed on these forums are the lack of successes after these, "Oh my god, I'm dying" posts. I promise that if on 5/20/10 I am healthy, I will repost here (I already set my BlackBerry :P ) If there is one thing I need righht now is LOGICAL hope.

Joking aside, these widespread fasculations are ruining my life. Help.

God Bless.
Anthony
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Re: Widespread Fasculations (Scared to death)

New postby monr905 on Thu May 21, 2009 1:53 pm

Somthings that I forgot to add in my inital post was that before I noticed the fasculations, I noticed that I had a pins and needles feeling in a couple of fingers on my right hand. This happened a couple of times, but has not happened since.

Thanks again.
Anthony
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Re: Widespread Fasculations (Scared to death)

New postby MG (Admin) on Fri May 22, 2009 7:27 am

Thanks Anthony,

Firstly I would advise you to look at this article about someone with very similar symptoms to you.
Secondly...it very much DOES look like BFS.
I assume your neurological examination is normal but in any case I usually send for an EMG ...mainly because when this comes back normal (and in my experience it always has in situation like yours when the examination is normal), then this usually provides full reassurance and peace of mind for the sufferer (which is very important IMHO).

So my advice is...if the neuro exam is normal and the EMG is normal then you can be 100% reassured that you do not have ALS.
In terms of treating BFS the best treatments are:-
1) Get reassurance that you do not have ALS!
2) More sleep
3) Less stress
4) Less caffeine
5) Ignore the twitching as much as you can.

Let us know how it goes.....I am sure you will be fully reassured very soon!

all the best

MG
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Re: Widespread Fasculations (Scared to death)

New postby monr905 on Fri May 22, 2009 7:41 am

Thanks -
My neuro appt is in 3 hours, so I'll let you know -

Thanks for the positive words. I can't tell you how much they mean. This has been h*ll! :evil:

God Bless,
Anthony
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Re: Widespread Fasculations (Scared to death)

New postby monr905 on Fri May 22, 2009 10:26 pm

Well - I arrived at the neuro today and I have to say that the 10 minutes that I waited in the waiting room seemed like years! I went in and the doc interviewed me and went over my history. He did a semi-quick physical exam, push this, pull this, step on the gas, etc. He then told me that before we went any further, I did not have ALS as I would have muscle weakness and wasting that I would not have to look for, it would find me. He did an exam with somthing that looked like a stun gun on idfferent muscles in my right hand and arm and told me that the pins and needles feelings in my right hand were from a mild carpal tunnel syndrome. Then came the EMG, I have to say that it was pretty much painless and he tested my arms and legs were most of my fasciciulations happen. He only saw one fasciculation on my thigh, not during the EMG and none during the EMG. He explained that the fasciculations with MND happen after muscle death. He scheduled me for a followup in one month to do some imaging for my possible back injury and sent me for thyroid bloodwork. He skipped the Lyme test, because I guess ticks in Rochester, NY are Lymeless? :wink: He diagnosed me with BFS and told me to get my anxiety under control.


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Re: Widespread Fasculations (Scared to death)

New postby MG (Admin) on Sat May 23, 2009 11:48 am

Sounds like good news and now you can relax!

all the best

:D
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Re: Widespread Fasculations (Scared to death)

New postby ddk101982 on Sun Feb 12, 2012 2:33 am

I know this is an old post but for anyone reading this in the future- In ALS the "twitching" starts AFTER muscle weakness/loss not before! Atleast that's how it's understood. The weakness/loss of muscle would be severe! You would not be able to stand on 1 foot, or drive, or unscrew the cap on a pill jar, or get up from a chair very well. I am not a Doc. or an expert, but I have done research and found this to be helpful for myself! It does make a difference knowing what symtoms come first. Hope this helps some of you out there reading this.
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