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Random fibrillations, new in adult with CP

Muscle twitches and fasciculations may raise the fear of a neuromuscular problem such as ALS

Random fibrillations, new in adult with CP

New postby dpm86 on Sun Aug 03, 2008 2:51 pm

Early 40s female with mild spastic diplegia, strabismus in one eye that could not be completely corrected, no problems with hearing, speech, cognition, seizures, etc. Very physically and emotionally healthy until recently, no hospitalizations except for CP and eye surgeries in childhood, not followed for these issues since then, last ER visit 20+ years ago for minor injury. Late last year, sudden onset of pain predominant irritable bowel syndrome, then a few months ago, muscle fibrillations-- not painful, not visible, not causing weakness, numbness, pins and needles, just sensation of crawling or brushing against skin, usually once or a few times briefly, stops, starts again minutes or hours later elsewhere seemingly at random. Originally occasional on abdomen, thighs, buttocks, lower back, thought temporary reaction to chronic abdominal pain and spasms, but in last 2-3 weeks, absent major abdominal discomfort, have escalated to more frequent and annoying, and also on lower legs, feet, arms, shoulders, upper back, but not face or neck. Normal routine exam with internist just prior to escalation, eating balanced, healthy diet, low caffeine, not on any meds or illegal substances, do not smoke or drink alcohol, exercise moderately. Chronic stress and sleep disturbances since IBS onset, but both improving while fibrillations were escalating. Aware this isn't an IBS symptom, but contacted MD to ask about possible related diagnosis, secondary complication, endocrine issue, etc. MD stated twitches were probably from CP, not medically serious, but if too annoying could prescribe anti-spasticity med. (not spasticity cramps!) Tend to be sensitive to side effects, some from this med may exacerbate sleep and GI issues, hesitate to take anything permanently unless origin of fibrillations and significant benefit of med are very clear. Why/how is this possibly from CP? Have never heard of ,read of, or known anyone with CP with similar fibrillations, CP does not progress, this is recent after 40+ years, including some areas of body minimally or not affected by CP originally. Any insight or possible alternative etiology to pursue appreciated.
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Re: Random fibrillations, new in adult with CP

New postby clinicalguru3 on Mon Aug 11, 2008 8:29 am

Please clarify:-

1) How does this affect you?
2) Are you in pain?
3) Do you see any changes in the muscle?
4) Have you had an EMG?
"...let the patient talk about their headache for at least 5 minutes without interruptions"

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