Nothing will stop my daughter from having seizures. HELP!

[nicoleneedshelp]

My daughter is 14 months old. Perfect baby hitting all of her milestones on time if not early. 8 days ago she came down with 103.4 fever (firts high grade fever ever) and we took her to her pediatrician and they diagnosed her with strep (later to find it was a false positive), and proscribed her asythromyocin (z-pack). As soon as she was given her first dose she went into a fibrille seizure. We rushed her to All Children's Hopsital (thank god their local) and was book into the ER. She was administered a LP, CT Scan, MRI and was then hooked up to a eeg. The CT Scan showed an arachnoid cyst in her cerebral fascia and is intercranial, but is not what was cause the seizures apparently because we later found out they were steming from the occiput of the brain. Her fever broke and she seemed better so she was released 3 days later with a form of ativan.the next day we were back in the hospital. She had a lateral to bilateral seizure lasting 3 min until the paramedics got there and administered the atavan. She then had 5 more on the way to the hospital and then 11 plus in the ER... we lost cunt at one point. That evening after the anti seizure meds they administered wore off she then began having controlled seizures in her sleep 1:45 - 4:45 am . SHe had 3. The first was around 4 min and she broke on her own. The second was 15 min later and she was given ativan at 5 min and brke right away, but the 3rd she was given the ativan at 3 min and didnt brake til 6-7 min later. She was given another LP, and MRI which revealed white area in the brain which wasnt there before, but still nothing from the LP. Infectious disease is still testing and we are waiting on results but almost all of the tests they have been running are turning out inconclusive. She was then prescribed phenobarbital and was also on dilantin and fospherytonin. The medicine seemed to be working she was responsive, somewhat alert, and wanted to walk. She even ate a little, but then after her nap, she woke up startled. I made a bottle started feeding her and she seemed to be nodding off but then she just started staring. No response to her name, loud finger snapping, nothing. Every so often she would just look at me blankly. Then she tightened her right fist and extended it as well as her right foot and turned her head to the right straining emitting a groaning noise as if she were stuck in her own body. after 12 min she broke and woke up talking. She had been sub clinically seizing for 4 hours straight. Her phenobarb level was at 41 with dilatin. They are talking about doing another LP but we need help. If you can help please contact all children's hospital and help save my little girl, we are going on 8 days now and it is just getting progressivly worse.

Nicole Morris 4/28/2011