Eplilepsy & Neuropathy

[RhiannonsMoon]

Hi, I've noticed the posts here are few and far between. I hope to get some help though. I have epilepsy, simple partial, complex partial, myoclonus and at night tonic clonic. I also have diabetes. I had neuropathy all over my shoulders for years, I would get scalded in the shower because I couldn't feel the hot water until it hit my belly or legs. It slowly spread to my arms and hands, and into my feet and legs. Now I am incontinent of bowel because it has it there too.

But I don't know that it is either epilepsy or diabetes. I have reduced neuro signs on my left side, and a lot of weakness and a huge amount of pain, which to me didn't make sense, I mean why should I be in pain when I can't feel the extremity? I've recently had another MRI done and I will be going to see the neuro about it as soon as an appointment is available; where I live specialists have to fly over from the mainland once a month for a weekend clinic.

I lose the use of my feet, the pain becomes unbearable and I simply not only can't walk, but as I am sitting with my legs elevated (clotting disorder), the pain is just off the scale off 10. Any possible answers would be helpful...I've considered doing something illegal to help with the pain...well I did but couldn't go through with it.

Thanks

Rhian

[kzwlj50]

I don't mean to seem ungrateful after being "seizure free for 13 yrs. My quality of life as changed dramatically after having the abnormality removed in 1998 from my RTL that was causing the seizures. No words can express how thankful I am. I highly recommend anyone comtemplating to have this surgery to have it done if you are candidate for it. The only frustrations I have is why my doctor only until now that I have been diagnosed, (May 2011) with having "pheriphal neuropathy" does he want to take me off the medication, (Dilantin-400mg daily). For 33 yrs Dilantin only helped to control my seizures. I still had seizures once or twice month while taking Dilantin. It was not until I had surgery did the seizures go away completely. I feel he should have wanted my off this medication long before now. I've gone for my yearly check-ups each and every year since my surgery. The last couple visits I advised him of the sensitivity in my legs. He said not to worry that was normal for patients that take Dilantin.

Of course I want to stop taking this medication because the doctor says my neuropathy will only get worse if I continue to it. The only down side I have is I live alone and I must lose my driving license for 6 mos. I'm not sure why because I've been seizure free for so long due to the surgery, not the medication. Has anyone ever experience this sort of dilemma? Any and all advice would be appreciated.